12.18.15

My heart is so very full! First and foremost I have to say a big THANK YOU to everyone who has donated to the go fund me page! Like seriously how blessed are we and how did we get so lucky with all these amazing people in our lives? Especially during Christmas when we know funds are tight! THANK YOU THANK YOU THANK YOU!!

Holden has started his home vent trials and is handling it like a champ! He is only doing 30 minutes a day twice a day but if he keeps doing well they will bump him up to 1 hour a day twice a day on Monday! The RT was saying that its good to go slow and build him up because the lung is a muscle and you need to work to make that muscle strong right?  

After his trials he is pretty tired. Its hard work! But they made some big vent changes and I feel like that has helped a ton with his episodes and is making the transition easier on the vent. 

You guys, he makes the funniest faces!

He will have to be on the home vent for 2 weeks straight 24 hours a day to be able to come home which is pretty lame but when he is on the home vent for longer periods of time we can take him out on little field trips. I cannot wait for that! Even if it's just to the R.V. in the parking lot to watch a jazz game! When he is able to go out I still will be careful of where he goes with cold and flu season so we probably wont venture far but I will take what we can get! Even if its just to Primary's for Dr. appointments. 

Go Jazz!

oh and a side note his speech therapist has been working on taste with him and he LOVES suckers! He loves the red flavors but not blueberry so much! He also gets to taste formula but definitely would rather have suckers. Can you blame him?

Still a little bit of an adjustment being here. But we are trying to make the best of it! :) 

Not much of an update but that's what we got going on now and it probably won't change much for a bit but we will keep you updated as things happen!  

This face kills me! 

Thank you so much for all the support we have received. I don't think I could say ever say thank you enough! We love each and every one of you and see all the nice things and support you have given us! If I don't post again before the holidays we hope you all have a very Merry Christmas!